For Deeds!!

Hi all its Monday and that means its Deeds blogging day!

I'd first like to say how much progress he has made, it amazes me everyday when his mom posts pics or tweets his updates for his. If you'd like to catch up then here is their blog .

But they have a new fundraiser and it is with Krispy Kreme donuts. Please help them out! Deeds needs a service dog!

Xbox Cheating?

This story has greatly upset me  xbox cheater

The video is heart breaking....because not only am I a gamer myself but this could be my son some day and I would hate for the one thing he loves the most to turn on him. I have to ask myself what I would do if it was us. Gaming is a way of life for my family, both me and the daddy play, the kids have their own accts. We don't get the benefit of always going out to places because of Racer sensory issues. So we are homebound by choice and I don't think many people get that about us. We don't go to the movies or out to eat and I haven't dreamed about Disneyland the way I used to. Our trip to Knotts killed that years ago. So we play video games, we watch movies on Netflix and I have to say that I love my life. There are some days that maybe I would cave and whine about not going anywhere but then I look around at how close my kids are because of what me and the daddy have made for them at home. A place where we all feel safe and comfortable. I'm not looking for the dirty looks lol because they only come from the teens.

Anyways getting off track here.

I feel bad for this family, and I'm going to submit a letter to xbox about my feelings towards it, because regardless of their statement. I've dealt with their bullshit, hell I got my acct suspended. But I also know that they are full of shit when they say they found a legit cheater. Someone ratted this kid out thats the way it goes with Microsoft. They do nothing until something is reported to them. I've played with cheaters and know for a fact that nothing has ever happened to them......so I'd like to know WTF microsoft? What did this kid do to deserve this treatment?

FU school District and oh thanks for services!

After finally getting the required services for Racer at his IEP yesterday I'm on cloud nine!!!! And to think it only too a fucking year for them to do it   WAY TO GO SCHOOL DISTRICT!!! There is one thing I will never ever understand about school districts.....ONE they either go wayyyy out of their way to support their students or TWO they don't give a flying shit about their students. I think in some districts they are just numbers, money making seat fillers. And that in my book is fucked up, NEVER EVER should a child be a money making seat filler. But it happens time and time again. So many of my other moms out there are still struggling to get services for their child or children. And I have to wonder what the fuck? Why is this a problem? Why do we have IDEA and FAPE? if they don't actually want to use it? Why are schools risking lawsuits that would cost them far more then actually giving the child the services they really need? Answer ONE to that is parents! Not enough of us know the ins and outs of all the laws that are always changing. Answer TWO is once again DING DING DING you guessed it, the school districts! You know that handy lil packet of paper they give you that address your rights and rules? Ever notice that they hand it to you RIGHT BEFORE the IEP meeting? Why don't they hand it to us when we request testing? How come they don't hand that out to parents who register their kids for school? I suppose we could stop the entire IEP process and sit and read it, but I don't think that is entirely the point here.

And even though I got services for Racer I'm fucking pissed that it took this damn long to get them! And will next year be another battle? The year after that? If I feel he isn't meeting his goals and they do? I have one thing to say and I'm going to say it loud and proud and I'm going to keep saying it till everyone gets it. IF YOU ARE WORKING WITH MY SON....AND HIS BEST INTERESTS ARE WHAT YOU ARE TRYING TO SERVE THEN LISTEN TO ME! Don't ignore me school district, school staff and teacher. I know my child better then you ever will!

Oh and PS the next time some one wants to accuse my parenting skills, last time I checked I was only having problems with ONE child not seven of them.

Where did Bonnie and Clyde go?

When PigPen was a baby, Racer paid her no mind. He ignored her cried, even covered her with a blanket so he didn't have to see her anymore. He was two, he was sorta of odd and I mean that in a endearing way because I never thought of him as odd. He was my child and I loved him and everything he did. As the year progressed and he didn't I became worried like most parents do (thats another blog). Turns out he had autism, so we cried and got lost like most parents do in that first year. But at the mark of 3yrs old for Racer and 1yr old for PigPen things began to change in their dynamic relationship. As Racer progressed and he got better (sorta) he reached out to PigPen. At first I thought it was awesome, he wouldn't really play with his older sibs as much as he would play near them. Or chase after them because that didn't need social rules to play it was either chase or be chased.

But with PigPen he didn't need to talk or impress her, she was impressed with just his quiet manor. The way he set up his toys and not ever once did she mess with them like most toddlers would. Then as PigPen turned 2 and Racer was 4 it changed even more. PigPen is the quiet type, she talks a lot now but she was smaller then the rest of the kids and was just generally quiet. But she loved her some Racer and Racer loved his sister. I could see it, it was there every day when he would seek her out when he woke up. How he would sit quietly in bed till she woke up and then it was time to play. Then they turned into Tommy and Dill Pickles from the RugRats I swear to god! I would fine them helping each other get into things they couldn't other wise without each other. It warmed my heart because no matter what they had each other. Then CareBear came into the picture and Racers sisters were his life. He adores them! And even though I've never heard him say "I love you" (without prompts) I knew how he felt!

Now here comes where it breaks my heart. PigPen is now 3yrs old and Racer is 5yrs old and CareBear is 1. And while he still adores his sisters. PigPen has some what out grown her dear lil brother. She's talking, expressing emotions, throwing needs for social structure and rules. And while she isn't firm in these things, Racer doesn't always understand it. Over the last 2yrs they were my Tommy and Dill, my Bonnie and Clyde because where one went the other followed! And sadly its changing, Bonnie is moving and growing and soon will see that her brother is different. But she will still love him, that is her Clyde I will never doubt the love my kids have for each other. Its evident everyday. No matter how much Wolverine fights with Racer that's his brother and he will and has defended him till his last breath (another blog)

So while Bonnie and Clyde may move slowly apart they will always love each other but its going to be different sooner or later. That last pic is old lol but CareBear won't sit still for pictures anymore lol

For Deeds!

I want to start by saying what a strong twitter community I belong to! I used to laugh at people on twitter because I thought it was a complete waste of time. I don't even remember how I got started on there again. But I'm glad I did. I have found similar struggles, and strengths in my twitter friends. And I adore each and everyone of them. When one cries we all do and then we all reach out to do what ever we can to help each other out.

Which leads me to Deeds. As I posted on my facebook page he recently suffered a accident which has left him burned. His family has blogged about it here and you can find their facebook page for them here. So here is where I ask for your help. All of you either outside of my twitter community or on my facebook page. They have been trying to raise money to get Deeds a service dog. If any of you don't know what that is you can find the information about them here. Its a great service and a great cause for a awesome family! They need your help and every little dollar helps. Even if you can donate you can pass along the word to someone who can. Our words our dollars our change can help him! So please even in these tough times remember in some small way to help out others who really need it.

WOOOHOOOO YAY ME!!!!

The most awesome of awards that I have ever received....almost better then mommy of the year!

This awesome award was given to me by Jen who I adore even though I've never told her! You can read her stuff at http://www.livinglifewithasideofautism.com/


This awesomeness started with Jill though and she knows I adore her lol and here is her blog page!http://yeahgoodtimes.blogspot.com/

With it comes many, many rules (and threats):

1. You must proudly display the absolutely disgusting graphic that I have created for these purposes (put it in your post, you don't have to put it in your sidebar, I think that would seriously be asking too much). It's so bad that not only did I use COMIC SANS, but there's even a little fucking jumping, celebrating kitten down there at the bottom. It's horrifying! But its presence in your award celebration is crucial to the memetastic process we're creating here. If you need a higher resolution version... I totally have one!!

2. You must list 5 things about yourself, and 4 of them must be bold-faced lies. Just make some shit up, we'll never know; one of them has to be true, though. Of course, nobody will ever know the difference, so we're just on the honor system here. I trust you. Except for the 4 that you lied about, you lying bastards! But don't go crazy trying to think of stuff, you'll see by the example I've set below that we're not really interested in quality here.

3. You must pass this award on to 5 bloggers that you either like or don't like or don't really have much of an opinion about. I don't care who you pick, and nobody needs to know why. I mean, you can give a reason if you want, but I don't really care.

4. If you fail to follow any of the above rules, I will fucking hunt your ass down and harass you incessantly until you either block me on Twitter or ban my IP address from visiting your blog. I don't know if you can actually do that last thing, but I will become so annoying to you that you will actually go out and hire an IT professional to train you on how to ban IP addresses just so that I'll leave you alone. I'm serious. I'm going to do these things. Starting with the 5 of you I'm about to pass this award on to.

Ok so here it goes... probably the easiest blog I will have ever written lol

1.I can speak over 50 languages

2. I once broke a jar of baby food over my ex boyfriends face

3.I live in a cardboard box with great internet service

4.I'm actually a Vampire

5. Also I'm a Ninja

Now here are my lucky award winners.

Nidia over at My Daughter is My Hero
Ellen over at http://www.lovethatmax.com/
SM over at http://www.themomadventures.com/
Jessica over at http://fourplusanangel.com/
Brenda over at http://mamabegood.blogspot.com/

So now its your turn!!

For Nicky

Dear Nicky

This is my most favorite song right now. It means a lot to me and my son his name is Racer and sometimes he gets picked on. Right now he is only 5 and sometimes doesn't understand what it all means but like him, you are a FIREWORK! Never let anyone tell you any different! You are a awesome young man, sometimes other kids can be mean and hurtful but you are a FIREWORK!! Never ever forget that! You can shine as bright as the moon!

Listen to the words to the song and remember you are a FIREWORK!!